Welcome to the EB Hope Foundation
A non-profit organization dedicated to providing hope for those affected by Epidermolysis Bullosa (EB).
Our Mission
Our mission is to spread awareness, raise funds for EB organizations, and provide resources and support to families and individuals battling this rare genetic skin disorder.
Through community engagement and fundraising efforts, we aim to provide a source of hope to those living with this extremely challenging condition.
Upcoming Events
Fall Fest for EB
Sunday, October 13th
2:00-5:00 p.m.
Kuliga Park
Cincinnati, OH 45248
Live Music featuring the Easter Rising Band!
Latest News & Notes
Pedals for EB Raises $10,000!
Imagine embarking on a journey of pedaling 500 miles in the heat of summer to raise $10,000 for a cause close to your heart. This is the mission that drives Dan Kuhlman, affectionately known as “Uncle Dan,” as he cycles to make a difference in the fight against Epidermolysis Bullosa (EB).
Pedals for EB Featured on Local 12 TV Station
Carson and his great-Uncle Dan were featured on Local12 TV to share the story about the 2024 Pedals for EB fundraising event. Uncle Dan has pledged to ride 500 miles in the month of June to raise awareness about the EB and funds to benefit the EB Hope Foundation. Uncle Dan’s fundraising goal is $10,000!
Make a Donation
Online or by Mail:
To make a secure, online donation via PayPal, click the “Donate” button below.
To donate by check, make checks payable to the EB Hope Foundation and mail to:
EB Hope Foundation
P.O. Box 810
Miamitown, OH 45041
Thank you for your support and providing hope for so many on the path to a cure!
Contact the Foundation:
info@ebhope.org
“I want to be an Inventor when I grow up. My first invention is going to be an EB-alizer that zaps kids with EB and heals them so they don’t have EB anymore.”
