Positive Impact for EB Families!
The EB Hope Foundation recently provided a grant contribution to the EB organization, debra of America. The grant provided funding for 7 EB families needing financial assistance to attend the national debra Care Conference (DCC) held in Atlanta in late July. Since 1980, debra of has been working to improve the lives of all people living with Epidermolysis Bullosa (EB) in the United States.
Information about the Care Conference from debra’s website:
The debra Care Conference (formerly known as the Patient Care Conference) is a national conference specifically designed for the Epidermolysis Bullosa (EB) Community and is held every two years in different cities across the US. debra of America invites those with EB as well as their families, advocates, and care providers to listen to, meet with, and learn from leading medical professionals as well as academic researchers and organizations who are conducting research into treatments and a cure for EB. Bandage manufacturers and distributors also attend and demonstrate their products and services.