The EB Hope Foundation is a 501(c)3 nonprofit organization whose mission is to spread awareness about Epidermolysis Bullosa (EB), support EB organizations and families and raise funds for research. EB is a rare genetic skin disease characterized by extremely fragile skin that rips or blisters from minor friction or trauma. Children with EB are covered from head-to-toes in blisters, inside and out. There is no cure for EB.
Make a Donation Online or by Mail:
To make a secure, online donation via PayPal, click the “Donate” button below. For donations by check, please make it payable to EB Hope Foundation and mail to:
EB Hope Foundation
P.O. Box 810
Miamitown, OH 45041
Thank you for your support and providing hope for so many on the path to a cure!
Pedals for EB 2023: Another Huge Success!
Dan Kuhlmann – aka “Uncle Dan” – once again put his cycling skills to work for EB Hope Foundation. For the second consecutive year, Uncle Dan took on the Pedals for EB challenge. But this year, he’s increased the stakes, and your support pulled him through this endeavor. Dan cycled 350 miles during the month of June 2023, and surpassed his goal of raising $8,000 by reaching $8,220 for EB Hope Foundation! Thank you, Uncle Dan and to all of his supporters!
Follow Uncle Dan’s Pedals for EB journey on Facebook by clicking here.
In 2022, Dan cycled 300 miles and raised nearly $5,000. Thank you for all your support.
About Pedals for EB: Dan Kuhlmann is an uncle to EB Hope Foundation co-founder Kristy Kissell and long-time supporter of our organization. You might remember him as DJ Dan during our past Walk for EB events.
In Loving Memory of Donald Kuhlmann
On behalf of the EB Hope Foundation, we express our sincere condolences to the Kuhlmann/Long/Kissell family for the loss of Donald Kuhlman. Long-time supporter of EB Hope Foundation, Don was grandfather to our co-founder Kristy Kissell. He loved attending the annual Walk for EB and often served as a photographer for the event. Special thanks to the family for designating our foundation for memorials.
2022 ETB Music Festival a Success!
Our friends at ETB Music & Fine Arts Center hosted its annual fall music fest on Sunday, Oct. 9 at Kuliga Park Amphitheater & Pavilion, in support of EB Hope Foundation. There were live performances from various solos, groups, and rock bands, along with many local vendors. Thank you to all who performed, attended and supported the event. Click here to watch Carson’s speech at the event.
Thank you to Burwinkel Farms!
Burwinkel Farms hosted their annual Sips in Sunflowers fundraising event on Oct. 1, 2022. Thank you to everyone who attended, in loving memory of sweet Nate Bernecker. We truly appreciate longtime support and generosity of Burwinkel Farms.