Welcome to the EB Hope Foundation
A non-profit organization dedicated to providing hope for those affected by Epidermolysis Bullosa (EB).
Our Mission
Our mission is to spread awareness, raise funds for EB organizations, and provide resources and support to families and individuals battling this rare genetic skin disorder.
Through community engagement and fundraising efforts, we aim to provide a source of hope to those living with this extremely challenging condition.
Latest News & Notes
Carson and Dad on Sacred Heart Radio
Carson and his Dad recently went on Sacred Heart Radio's The Son Rise Morning Show to talk about Carson's prayer ministry, Praying With Carson, and this year's Fall Fest for EB, which is taking place on Sunday, October 13. Pictured above is Carson and dad with the...
Upcoming Event – Fall Fest for EB is October 13
The Fall Fest for EB is a fun-filled day of autumn activities, delicious treats, live music, and hope-filled spirit, all in support of the EB Hope Foundation. This year’s event is taking place on Sunday, October 13 from 2-5pm at Kuliga Park on the west side of Cincinnati.
EB Hope Helps Families Attend EB Care Conference
The EB Hope Foundation recently provided a grant contribution to the EB organization, debra of America. The grant provided funding for 7 EB families to attend the national debra Care Conference (DCC) held in Atlanta in late July.
Make a Donation
Online or by Mail:
To make a secure, online donation via PayPal, click the “Donate” button below.
To donate by check, make checks payable to the EB Hope Foundation and mail to:
EB Hope Foundation
P.O. Box 810
Miamitown, OH 45041
Thank you for your support and providing hope for so many on the path to a cure!
Contact the Foundation:
info@ebhope.org
“I want to be an Inventor when I grow up. My first invention is going to be an EB-alizer that zaps kids with EB and heals them so they don’t have EB anymore.”
