Welcome to the EB Hope Foundation
A non-profit organization dedicated to providing hope for those affected by Epidermolysis Bullosa (EB).
Our Mission
Our mission is to spread awareness, raise funds for EB organizations, and provide resources and support to families and individuals battling this rare genetic skin disorder.
Through community engagement and fundraising efforts, we aim to provide a source of hope to those living with this extremely challenging condition.
Latest News & Notes
Burwinkel Farms and HighGrain Brewing Co. Make Contribution after Successful Fall Event
Burwinkel Farms once again partnered with HighGrain Brewing Company to put on a successful Sips in Sunflowers event this past Fall. The event raised $13,000 to benefit the EB Hope Foundation.
A special check presentation took place at HighGrain to help celebrate another great year.
Grant Contribution to EB Center at Cincinnati Children’s
At the end of 2024, the EB Hope Foundation made a grant contribution to the EB Center at Cincinnati Children’s Hospital to benefit the EB Family Crisis Fund. The crisis fund provides support to families with expenses that insurance does not cover when coming to the EB Center for treatment.
Carson and Dad on Sacred Heart Radio
Carson and his Dad recently went on Sacred Heart Radio's The Son Rise Morning Show to talk about Carson's prayer ministry, Praying With Carson, and this year's Fall Fest for EB, which is taking place on Sunday, October 13. Pictured above is Carson and dad with the...
Make a Donation
Online or by Mail:
To make a secure, online donation via PayPal, click the “Donate” button below.
To donate by check, make checks payable to the EB Hope Foundation and mail to:
EB Hope Foundation
P.O. Box 810
Miamitown, OH 45041
Thank you for your support and providing hope for so many on the path to a cure!
Contact the Foundation:
info@ebhope.org
“I want to be an Inventor when I grow up. My first invention is going to be an EB-alizer that zaps kids with EB and heals them so they don’t have EB anymore.”
